Yes!! we’re still here and the GD is still present. It has started to lessen a little – AGAIN. However, I do still feel that her bowels (constipation) cause her GD “flare” up. Once again, despite a diet full of fiber – fruits, veggies, flax seed, etc., her constipation has returned and with it her GD full blown. Little side note: we had for quite a while stopped using the Miralax at all because she had become regular and the GD had almost disappeared.

Though I don’t think I’ve made it clear enough on the site that her GD behavior is not nearly as severe as it was when this all started or even at present.  She does stop now, will eat, play and so on. BUT if she’s very constipated then she will con’t to talk to us through her GD telling us she needs to move her bowels (instead of running to her bed to GD she’ll just cross her legs wherever). And lately she’s started saying ” mommy my butt hurts” or ” the poopy hurts” Which just leads me to believe that all along I’ve been right regarding my daughter.

The bathroom drama has started up again. Fighting with her on the toilet to move her bowels. Which is a difficult situation because I don’t want her to fear the toilet nor do I want her to hold her bowels because she’s afraid of that too. Yes, I have tried BM’s in the diapers vs. toilet … I think the toilet is best for her right now because she’s very aware of everyone using the toilet and has showed interested in losing her diaper all together. Maybe that will change things …?

Her Bm’s are turning gritty again (sorry for the roughness of description) like sand from the beach mixed with normal -soft bm. Which I still can’t believe is normal. However, the last time this happened we had her tested and all came back normal.

Still working with OT twice a week, Nutrionist once a month, and a wonderful coordinator once a week.  My daughter has made some great progress these last few weeks with her sensory disorders (remember this is her ONLY downfall and even still it’s so mild tht she didn’t qualify for services until they evaluated her on a GD day ). She’s lost her fear of new surfaces / touches, Swinging with feet off the ground, more independent – instead of sitting on the sidelines, crashes into things more – because she’s lost the fear of deep pressure, …. The list just keeps going. Is there an end in sight?

Thanks to all who have posted and gotten in touch with me. There have been over a thousand views from new visitors in the past 10 months!! We’re not alone in this. Please talk to me and each other. Feel free to use the forum that’s why it’s there as a back and forth between all place to talk.