Thanksgiving – The entire family was here. All of my daughters most favorite people ( minus her favorite aunt - Nana ) and yet we dealt with GD ALL DAY!!!!!!!! This poor little girl barely interacted with anyone, barely ate (yes!! that includes the wonderful dinner that her father and uncle had made) and as far as I’m concerned didn’t enjoy the day at all. That is not until she moved her bowels. When was that you ask … Literally as the last group of family were walking out of our house. They even came to the bathroom to say good night.

After she was all done (and the holiday had passed) she was back to “normal” and full of life!!!!!!!! She was running around the house laughing and playing. She wanted to do a thousand things with us (mom and dad) and of course by then it was bed time. But it was such a joy to have her like this we kept her up way to late. It was worth every minute!!!!

I can see that many people are reading this site. Whether you’re first time viewers because you just received this diagnosis for your child or perhaps someone who has been dealing with this for a while and are just researching to see if there’s anything new please get in touch with me. There’s no need to worry about discretion or worry that I’ll know who you are. Please I can barely turn my computer on. I’m doing this (blogging) in hopes that I’ll connect with many others and get us all together. Don’t know about you but it feels awfully lonely on my end when 99.9% of the doctors and so on that I’ve spoken with have no idea what I’m talking about and then I end up educating them on GD. Worse still is when we’re out and my daughter is the only child doing this. I can’t stand the looks I get from others. At times I feel like they’re looking down on my daughter for what she is doing. I know they don’t know exactly what it is. But to anyone it’s still an “odd” behavior and you can see the “Wonder what’s wrong with her” look in there eyes.

Other times I feel they’re looking down on me for they way my daughter is. Honestly I could care less what others think!!!!!!!!!! I’m just tired of having to explain everything (those deserving of an explanation) or making up “reasons”. It would be s very very nice to just be able to talk to whole group of people who just get it – for lack of a better term.

So, please I urge you one more time to please consider signing up for the forum. It would be lovely to have a place where we’re all together. Thank you either way for your time and for reading this.