So, I thought that this was all going to be a dream and that when I woke this AM the GD would be here as it has been every other morning for the past year. Well … For once I was wrong!! Thank God!!! She woke up, came right out of her room and sat in my lap to “nuggle” and have our morning “go,go juice”. Coffee for me and milk for her . I just kept thinking any min. now I’ll see it. But guess what … I didn’t. We played, colored, read books, snuggled, ate breakfast, got dressed and had a diaper change – all free of GD. We went through every situation this AM where we would’ve seen it and didn’t.

Then just as she was getting sleepy I saw her press her legs together for  about 5secs ONLY!! I ran over picked her up (nicely of course) and placed her in her bed for her morning nap. She fell asleep immediately WITHOUT GD. Again something I haven’t seen in forever.

I kept saying to myself don’t get too excited this has happened before and by the end of the day it’s back. But not today Today she was 100% the little girl I remember from before this started to control her. It was like I was playing with a whole new child. And 99% of the stress I have in a day comes from me saying “Not here honey., Not now sweetie., Remember in your room only peanut., the different phrases go on and on. What an extremely pleasant day to not have to say anything other than ” Hey what would you like to do now?” and to know we’ll actually do it together. By tonight the GD hadn’t shown itself at all since the 5sec thing in the AM. She ate all meals including snacks and interacted FULLY all day long. She even rode in the stroller / car seat with no GD.

Can you believe this? I really feel that this is so strongly connected with her bowel movements. Which by the way she had another today WITHOUT ANY GD AT ALL. In the past that’s what she would do while trying to pass her bowels. I didn’t even know she had a dirty diaper until she walked past me. That would now make four very large BM’s since tues afternoon! I even changed her diaper without a scene.

I’m so anxious to meet with this GI Dr. tomorrow and hear what has to be said. Now I’ll just have to try and figure out which one of these things cause’s the GD to flair up so badly and for so many days at a time. Is it that she’s constipated or was she once and it hurt/was uncomfortable so now she’s afraid to move her bowels and she holds it in? Possibly that she just doesn’t want to go in her diaper and she holds it in so long? Or is this related to her tactile sensory issue (as per her O.T. bowel movements are part of tactile sensory) that we’re trying to help her with as of last week?

Ironic that this is all coming about now now that I have all this help here and am getting so many different people in the community aware of GD i.e. Dr’s, case workers, social workers, Occupational therapists, Behaviorists, etc. and it’s not just one a piece. We’re all networking together to piece together all these pieces until we find someone with all the answers to our question’s. Here’s to hoping that tomorrow will as wonderful as today –  if not better!!!!