We’ve definitely maintained a level of control here on our end. My daughter’s diet is being monitored by a nutrionist and seems to be regulating her bowel movements quite well. Her Miralax is down to once every other day and a smaller dose too!! This is great. Yes – We still have GD present every day but it seems to be “controlled” sort of speak.

I’m in contact with another mother who is having her daughter evaluated for sensory disorder’s. She asked me if I felt this plays a part in my daughter’s GD behavior. My answer  – YES!!!! There is no doubt in my mind that this is all somehow connected. Before she was evaluated and found to have Tactile Defensiveness ( the ONLY thing found – no delays / other disorders or other diagnosis – just this!! ) we had horrible days that would leave me in tears and beyond frustrated!! Now with the help of some VERY wonderful people who are working with my daughter we haven’t had a worse day since!!!! To my daughter they’re simply playing but they’re really looking for certain things and working on those areas as playtime.

They leave us with instructions to allow us to continue with their work – which is all simple things to follow i.e. forms of play, textured items, things to look for. It’s all explained fully and they’re always available for question’s and always thinking of new things to try.

Granted the GD is all new to them and we’re all working on this together but it’s together that we’re helping my daughter live a better life where she can enjoy her days fully instead of the GD taking the day over.

So, yes, I do feel that sensory plays a part in GD. At least for her it has proven to be key in helping her control this behavior.  

Posted: January 20th, 2008 under Uncategorized.
Comments: 1

Well there’s not too much for me to say. The holiday rush is over and thing’s are just beginning to calm down. Thanksgiving, like I had said was full of gd as far as my daughter is concerned. And only one x-mas get together GD was present until she moved her bowels and then all was back to normal. We’ve met with the nutritionist and have since modified her diet and lessened the Miralax. She’s now moving her bowels almost daily which seems to be keeping the GD at bay. I really feel that this seems to be the major cause of her GD. I’m not convinced talking with the people I have been in contact with that she’ll actually out grow this. I appreciate all the honesty from everyone. I know it’s difficult to talk about and must be harder still when it’s about you directly. As disheartening as some of it is to hear it’s all wonderfully useful in coping with GD and trying to figure this out a little better. Thank you all so much !! Please continue to keep in touch.

Posted: January 5th, 2008 under Uncategorized.
Comments: none