SO here’s something interesting!! The E.I. eval actually found something that all these Dr.’s have missed!!! I’m not sure yet of all the details. I’m waiting for the written report from the evaluators but my daughter was found to have sensory issues – I believe the exact term was tactile sensory- and some very slight motor skills / upper body strength issues. I hear that sensory issues are on the rise. A friend of mine said something like 1 in 164 kids now are diagnosed with sensory disorders. I’m sure how absolute that statement is – hear say for me but it came from a very reliable source.

The gratification Disorder may be something she uses to calm herself because of this sensitvity to her environment. So there may actually be a reason why this has continued to get worse !!Much better than what I had been hearing – the same response over and over - ” There’s no real cause it just is a part of normal development and it will pass.” May also explain why she increases in the behavior when she needs to move her bowels – she’s extra sensitive!!

So because everyone I’ve met so far was so quick to say ” Yeap Gratification Disorder” and never bothered to explore other possibilities for the rise in behavior this may have gone unnoticed and, like I used in the pacifier example, may have gone unoticed her whole little life until she out grew her sensory issues ( if that’s possible). By which time I bet she’d continue with the behavior out of habit instead of neccesity for soothing.

So I’m glad I took it upon myself to continue to explore as many options as possible. I’ve learned something more about my daughter and hope this new found info will help us come up with a system that works for her and helps lessen this behavior that she’ll hopefully grow out of faster if we can pin point what it is exactly that bothers her.  And if this never helps the Gratification Disorder itself at least in my search’s I’ve found a way to help my daughter when I didn’t even know she needed help! So at the very least soemthing good is coming from this. That’s what I’m trying to say.

As soon as I get the wrtten report I will post what they’ve found / said.

But the night of there visit ( three more since ) I layed in bed with her at bedtime and just gave her a very lite back rub and she fell right off to sleep without doing “it”. So just maybe … fingers crossed